We currently work with around 30 corporate partners in a variety of ways including:
Alexion is one of our major long term corporate supporters. Last year we collaborated on running a national patient experience survey which resulted in production of two independent reports on the experience of living with rare conditions in the UK.
Takeda has been supporting our work for many years through Rare Disease UK membership, sponsorships and grants for numerous projects. We are also one of the main partners of their ‘I am number 17’ campaign.
‘Working with Genetic Alliance UK is always very collaborative and impactful. Through open communication and understanding each other’s priorities and strategic objectives, we are able to engage in activities that ultimately benefit the rare disease community. An example of a fruitful collaboration is the patient experience survey through which better insights have been gained with respect to the challenges and realities of those living with rare conditions.’
Our work with our corporate partners is governed by our ethical collaboration policy and working with industry policy.
To discuss the benefits of working with us and becoming a corporate partner please contact corporatepartnerships@geneticalliance.org.uk.
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