HOW DO I GET LIFE OR TRAVEL INSURANCE IF I HAVE A RARE OR GENETIC CONDITION?

Accessing appropriate insurance is a significant problem for many people affected by genetic conditions. We regularly receive helpline calls and emails from people affected by genetic conditions who are finding it difficult or impossible to access appropriate or affordable insurance cover. People are also uncertain about their rights and obligations in relation to disclosing details of genetic risks or family medical history. Our information in the living with a genetic condition section covers insurance and issues arising from genetic testing.