Genetic Alliance UK News

Turquoise background with white text in the middle reading: 'Shining a light on rare conditions

Genetic Alliance UK partners with ITN for Rare Disease Day 2022

Genetic Alliance UK Join Interim CEO and Director of Policy, Nick Meade, being interviewed. Nick is wearing a mustard coloured jumper and glasses

Genetic Alliance UK shines a light on rare conditions

IMF screenshot from NICE website

The innovative medicines fund consultation

Action FCS

Image shows a crowd at Genetic Alliance UK conference

Building Rare Resilience – round three

WHAT IS AARSKOG SYNDROME?

Three boxes in the shape of a triangle with arrows pointing in both directions between them. Each box has one of the groups implementing the framework, as listed in the article.

Rare voice in policy

Wheelchair with a banner draped over it saying UK Parliament

#RareAPPG: Get MPs to support people living with rare, genetic and undiagnosed conditions

staff colourful jumpers sit at their desks in front of their computers, smiling at the camera

Corporate Partnerships Manager (Fundraising)

smiling man in white shirt and black glasses

Development and Sustainability Manager (Fundraising)

Images of Patricia and her family

25th anniversary of Patricia’s heart transplant

A woman is holding up a child who is wearing a blue coat.

Childhood Eye Cancer Trust – Aazmeen’s story

Spotting signs of retinoblastoma – CHECT

Myotonic Dystrophy Support Group

Make your energy switch count

Screenshot of ‘Breaking Down Barriers’ animation. Four stick figures standing next to a tree with flowers by their feet and a cityscape behind them. ‘Lived experience’ and ‘Expertise’ are written in two clouds in the sky.

Breaking Down Barriers animation launch

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