Genetic Alliance UK News

Events around Rare Disease Day written in pink and green. There are three photos with a paint marked digital frame around them. The photos are of each parliament building in England, Wales and Scotland

Our Rare Disease Day events

A bunch of feet of runners at a marathon

Run for Charity

Genetic Alliance UK's Impact Report cover. A young girl in a wheelchair holds a lizard in her hands. She looks up at a woman who is bent down. They both look really happy looking at one another. The girl wears a patterned bright multicoloured jumper.

Join us in celebrating our achievements over the last year

Screenshot from the announcement video of Genetic Alliance UK's collaboration with ITN Business. Four images of people of different genders, ages and ethnicities are seen in each corner and the title of the programme, 'Rare Conditions: The stories behind thee stats' is seen in the centre.

Genetic Alliance UK and ITN Business to launch ‘Rare Conditions: The Stories Behind the Stats’

Welcome to our new Trustees

Celebrating PTEN Awareness Day

A man looking over to a woman laughing. He wears glasses, has his dark hair tied up. You can see the womans back of the head, she has long wavy dark hair with light pink/red highlights

Guidance on genetic testing and insurance

Challenges for patient organisations going through a Managed Access Agreement

Two woman reading the Cell and Gene Magazine produced by Genetic Alliance UK, a piece of paper with the Catapult for Cell and Gene Therapies is blurred in the foreground

Cell and Gene Therapies Magazine

Using genetics to improve medicines

Thoughts into Action

Mindful Of Huntingtons

Changes to the regulation of clinical trials in the UK

OCNDS Awareness Day

John Walton research centre and Muscular Dystrophy UK's logos side by side

Patient Registries – a collaborative approach

people at an even crowd raising their hands. logos of Genetic Alliance UK, ATTC, Catapult and EuroGCT are at the bottom.

Good information about cell and gene therapy