Genetic Alliance UK News

A group of families stood outside a city farm on a hot day as most of them individuals wear t-shirts and shorts.

Four gatherings for Aniridia Day

Screenshot announcing the Wales Action Plan for Rare Diseases

Wales Action Plan launches

A head shot of the two Genetic Alliance members who are leaving the team.

Best of luck to Lauren and Farhana

screenshot from NICE website with Innovative Medicines Fund Principles as a title

Innovative Medicines Fund: Consultation Results

A family selfy photo on a bright sunny day.

Cavernoma Awareness Month: The Harmes Family

A photo of a family. The mum sits at the fron. the daughter stands next to her. The son sands behind and the dad behind him. Behind there is a mountain with a snow covered top. The weather is a bright sunshining day with blue sky and a few white clouds.

Cavernoma Awareness Month: The Liggett Family

seats in parliament with a blue square that reads Down Syndrome Act, an update

Down Syndrome Act – An update

backs of seats in the houses of parliament

Down Syndrome Act

Girl sitting high up with her back to us looking into the distance

Mental health and rare conditions

woman taking a photo of exhibution space that looks as though it is projected words on a wall, the woman also has those words projected over her.

Citizens’ Jury on Genome Editing

Which conditions should be screened for – have your say

AKU Society team

10 years of life changing National Alkaptonuria Centre

Wanted: fresh ideas and diverse views!

A boy sat in a sofa smiling. He has one eye closed and has one hand holding his foot. He is wearing green pajamas

‘We spotted our son’s eye cancer the day he took his first steps’

A girl stanidng in fron of some steps. she has dark hair and glasses on top of her head

Polina’s Poland syndrome journey