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ALL PARTY PARLIAMENTARY GROUP – RARE DISEASE DAY 2020

At our Westminster Rare Disease Day reception, the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions, to which Genetic Alliance UK provides the secretariat to, met to discuss the strategy for rare diseases and alert cards. Liz Twist MP was elected as the new Chair of the APPG and vice chairs and officers were also elected.

READ THE MINUTES FROM THE RECEPTION

https://www.raredisease.org.uk/wp-content/uploads/sites/7/2020/03/RDD-2020-APPG-AGM-Minutes.pdf

 

Rare disease day conference

Liz Twist MP speaking at our Rare Disease Day reception in Westminster.

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