Genetic Alliance UK is undertaking research to help understand the impact of parenting children affected by Adrenal Insufficiency including Congenital Adrenal Hyperplasia (CAH). This work is being undertaken as part of the opens in a new windowTAIN (Treatment of Adrenal Insufficiency in Neonates) project, which has been funded by the European Commission and aims to develop a new neonatal treatment.
Genetic Alliance UK is now opens in a new windowundertaking research to explore the impact of adrenal insufficiency on parents of affected children, and to gather health economic data.
The survey is now online and should take no more than 40 minutes to complete. The survey is available in English, German or Dutch. To find out more or to complete the survey, please click on the links below.
Survey in opens in a new windowEnglish
Survey in opens in a new windowGerman
Survey in opens in a new windowDutch
If you have questions, or want to find out more about this project please contact our Research Associate, Amy Simpsoncreate new email, for more information.