Share your experiences of antenatal and newborn screening.
Your involvement in the VALENTIA study will help to make recommendations to improve screening.
Participants in the UK can take part in one of two ways:
- Two-session focus group: a friendly online chat with a group of up to six people with a similar background as you share your experiences. The first session is background information and second session will involve sharing your positive and negative experiences. The sessions take place on a website designed for the research. The conversation will be anonymous and no cameras will be present.
- Individual telephone interview: a private conversation with a researcher to talk at length about your journey. This will last one to one and a half hours.
Participants will get a £20 voucher for taking part.
If you are interested and would like to know more details about the study, please contact Ashley White: [email protected]create new email
This study is funded by the National Institute for Health Research (NIHR) Health Technology Assessment (HTA) Programme (Reference Number NIHR127489).
Research collaborators include academics from: University of Oxford, University of Cambridge, University of Warwick, University of Aberdeen, and St George’s University Hospital NHS Foundation Trust.