The National Institute for Health and Care Excellence (NICE) provides national guidance and advice to improve health and social care, including guidelines on diagnosing and managing specific conditions and recommendations on whether some treatments for genetic and rare conditions should be commissioned in the NHS in England and Wales.
There are a number of ways by which patient organisations can get involved and help shape NICE’s guidance. You can help them identify what is important for the patients and families you support when using health and social care services. We hosted a webinar to find out about some of the ways you can ensure the voice of your community is heard.
- Heidi Livingstone, Senior Public Involvement Adviser, NICE’s Public Involvement Programme (0:00 – 21:40)
- Louise Coleman, Policy Analyst, Genetic Alliance UK (21:40 – 30:00)
- Dr Susan Walsh, Director, Primary Immunodeficiency UK, on their experience of the Highly specialised technology (HST) programme (30:00 – 50:20)