Webinar: Rare Disease Day 2019

Rare Disease Day is less than a month away and, in the preparation for it, we ran a webinar to help support individuals and organisations on how to get the most out of this awareness day.

Farhana Ali, our Public Affairs Manager, lead the webinar, to inform patient organisations and Rare Disease UK supporters on our exciting new concept for Rare Disease Day 2019 and how to get involved. This year you will be able to access and personalise resources, for example, to raise awareness of a specific rare condition, share your personal experience, or add your charity/company logo. During the webinar, we demonstrated how to access and download these personalised asset.

You can watch the webinar here: https://www.youtube.com/watch?v=ptcEonG_NgY&feature=emb_logo