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Living with a genetic condition

We produce information for patients, families and anyone interested in genetic conditions. Here you’ll find information about the basics of genetics and inheritance of genetic conditions, information about research, different types of genetic testing, genetic services in the UK and reproductive techniques for people at risk of passing on a genetic condition, as well as information for living with a genetic condition. If you are looking for condition specific information our members might be able to help.

  • Living with a genetic condition
  • Learn about genetics
  • Services & testing
  • Research & innovation
  • Support organisations
SWAN Bristol Family

Rare Resources Scotland

Finding information about a rare or genetic condition

Finding information about a rare or genetic condition

FINDING SUPPORT FOR A RARE OR GENETIC CONDITION

Finding support for a rare or genetic condition

Government genetic code paper

INSURANCE, PRIVACY AND THE CODE ON GENETIC TESTING

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Travel Insurance

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What if I have been refused insurance?

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Life Insurance

A mother and child

Insurance, family history and genetic testing

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Insurance and genetic conditions

Join our alliance of 200+ SUPPORT ORGANISATIONS AND charities

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Support
  • NHS Genetic Services in the UK
  • What is a genetic test?
  • Finding information about my condition
  • Finding a support group
  • NHS Genetic Services in the UK
  • What is a genetic test?
  • Finding information about my condition
  • Finding a support group
Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:
  • Westminster APPG
  • Welsh CPG
  • Scottish CPG
  • Westminster APPG
  • Welsh CPG
  • Scottish CPG
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  • Ethical Collaboration Policy
  • Privacy Policy
  • Donation Policy
  • Complaints Policy
  • Working With Life-sciences Industries Policy
  • Disclaimer

© Genetic Alliance UK 2021
Registered charity numbers: 1114195 & SC039299. Registered company number: 05772999

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