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Genetic Alliance UK is the largest alliance of organisastions supporting the UK’s genetic, rare and undiagnosed conditions in the UK. Our 200+ members and the people they support are at the heart of everything we do. 

Established in 1989, we advocate for fast and accurate diagnosis, good quality care and access to the best treatments.  We actively support progress in research and engage with decision makers and the public about the challenges faced by our community.

Become a member of Genetic Alliance UK

An audience sat down, many who are raising their hands up.

Are you an organisation supporting individuals and families affected by genetic, rare or undiagnosed conditions?

Our membership is open to group, charities and organisations working with the UK’s genetic, rare and undiagnosed conditions providing support, funding research, and/or producing information.

Some of the benefits of being a member include:

  • Increasing your reach
  • Increasing your impact
  • Increasing your network

You can find out more about the benefits of joining the UK’s largest alliance of genetic, rare and undiagnosed organisations in our 2022/23 membership benefit pack.

Click below to apply to become a member of Genetic Alliance UK or contact for more information.

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Register For Genetic Alliance Updates

Are you an individual with an interest in genetic, rare and undiagnosed conditions?

Our bi-monthly Genetic and Rare News is relevant for individuals and families affected by genetic, rare and undiagnosed conditions, researchers, clinicians, policy maker or anyone who wants to know more. 

We also have mailing lists for specific subjects that might interest you like taking part in policy or research projects, fundraising for us, or being a media volunteer.

We take your privacy very seriously and will never share your data with anyone else.  You can find our Privacy Policy here. You can also unsubscribe at any time by clicking the link at the bottom of our emails or emailing with ‘unsubscribe’ as the email subject.

Sign up to hear more about our work and how to get involved here.