Action Fcs

Action FCS is the UK charity for people affected by familial chylomicronaemia syndrome (FCS).

FCS is an ultra rare autosomal recessive condition that affects about one to two in a million. There are about 120 people in the UK who have it, however it is thought that the condition is under-diagnosed and that numbers may be higher. People with FCS can’t eat fat as they don’t have the enzyme which breaks it down, or what enzyme they have doesn’t work properly.