Alex, The Leukodystrophy Charity is a patient support group for patients and families affected by a genetic leukodystrophy. They provide emotional and financial support to patients and families including a grants programme that helps families cover vital support costs.
What do we do?
• Provide practical and financial support, advice and information to patients and families affected by a genetic leukodystrophy
• Raise awareness and improve public and professional education into these conditions
• Advance medical research looking into finding better treatment