Alk Positive Uk

ALK Positive Lung Cancer (UK) is a registered charity established to improve the overall survival and quality of life of individuals affected by ALK-Positive lung cancer in the UK. 

They have a Facebook group for ALK-positive individuals and their families; they identify and locate ALK-positive individuals through engagement with key healthcare professionals; they hold national meetings where ALK-positive individuals can hear from and ask questions of experts; and they liaise with decision makers e.g. NICE, DVLA, NHS and the medical profession to promote the best treatment for affected individuals.