ALK Positive UKALK Positive Lung Cancer (UK) is a registered charity established by patients and carers. We provide support and advocacy to improve the overall survival and quality of life of ALK-Positive lung cancer patients in the UK. We:
- Have a Facebook group for ALK-positive patients and family which offers mutual support;
- Identify and locate ALK-positive patients through engagement with key healthcare professionals;
- Hold national meetings where ALK-positive patients can hear from and ask questions of experts;
- We liaise with decision makers e.g. NICE, DVLA, NHS and the medical profession to promote the best treatment for patients.