Alpha-1 Uk Support Group

The Alpha-1 UK Support Group is a charity founded by those diagnosed with the genetic condition alpha-1 antitrypsin deficiency (AATD) who are dedicated to help, advise and support fellow sufferers, their families, carers and friends. They have a 24-year history of providing information, advice and practical and financial support to AATD affected individuals.

They campaign to heighten the awareness of AATD and the burden of living with this condition; they work collaboratively with expert clinicians and politicians to effectively communicate the unmet needs of the AATD affected community to policy makers; and they design and drive initiatives to improve access to adequate healthcare services and effective treatments for AATD affected individuals across the UK.