The CAH (Congenital Adrenal Hyperplasia) Support Group was formed approximately 16 years ago. It is a sub group of CLIMB (Children Living with Inherited Metabolic Diseases), which is a registered charity (No. 1089588). Both CLIMB and the CAH Support Group exist to: -
a) Give support to families and sufferers
b) To increase awareness of the condition to the public and to the medical profession
c) To raise funds to support research
The support group committee meets yearly to discuss the Group's progress and plan new events, and is made up entirely of volunteers, some of whom have CAH themselves.
We hold conferences and informal meetings at regular intervals and a newsletter is sent out at least twice a year. Our current membership stands at approximately 400 families and 150 professionals and our key to success is getting information to where it is needed as soon as possible after the need is recognised (i.e. at diagnosis when this time is crucial).
If you are at all affected by the condition, please consider joining as a member. With your support we can make sure that others affected by CAH get the support they need. To learn more about membership, please click HERE.