hae uk


HAE is characterised by huge swelling of the tissues (angioedema) which last from 3 to 5 days. These swellings can occur on any part of the body; hands and feet, arms and legs, trunk, intestines, genital organs, face, tongue, neck and airway. ​HAE UK started as a small patient support group in October 2010. We became a registered charity in 2013 (charity number 1152591) and now have a team of dedicated trustees, medical advisors, Laura (CEO), Rachel (EO), Alex our Youth Ambassador and a small team of volunteers.

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