trps support group uk

TRPS Support Group UK

TRPS Support Group UK provides sympathetic support to those with trichorhinophalangeal syndrome and their families. We are a small, not-for-profit organisation run by our members who all live daily with the effects of TRPS. Our main aims are: Helping others who may be without support or information about the condition Giving reassurance to others through our own experience Raising awareness of TRPS amongst the medical profession and the general public We offer support in a variety of ways: Providing a forum for exchanging knowledge and seeking further information Helping others to source clinical help and management Providing a listening ear when needed Exchanging emails Arranging introductions

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