tuberous sclerosis association

Tuberous Sclerosis Association

Launched in 1977 with a membership of 50 families and funds of £25, the Tuberous Sclerosis Association (TSA) has grown from a round robin support letter, to a professional organization providing support to families affected by TS across the UK. The TSA has 3 main objectives: To support individuals affected by TSC, together with their families or carers. To encourage and support research into the causes and management of TSC. To provide education and information. Our Mission: “to provide hope for today and a cure for tomorrow” Trustees TSA Trustees have a personal connection with Tuberous Sclerosis Complex. Many of them are parents of children with TSC or individuals with TSC. If you would more information about the Board of Trustees or are interested in getting involved please contact the Chairman. Presidents: Christine Naylor Hon Life Vice Presidents: Esther Galbraith Tom Carter Anne Carter Christine Naylor Trustee Officers: Chairman – Martin Short Deputy Chair - Isabel Divanna Treasurer and Company Secretary - Rob Vaughan Other Trustees: Dr Chris Kingswood - Head of Research Strategy Lisa Suchet Jean Willson Patrick Bolton Philip Goldenburg Robert Woodthorpe Brown Committees The following committees are made up of Trustees and other members of the association. If you would like to be more involved in the work of the TSA then becoming a member of a committee is a good way to start. Contact us for more information. Finance Committee: Tom Carter, Philip Goldenberg, Dr Chris Kingswood, Christine Naylor, Rob Vaughan. Research Committee (RESCOM): Prof. Alex Blakemore, John Blay, Jeannie Blay, Prof. Petrus de Vries, Dr Frances Elmslie, Dr Eric Finlay, Dr Danny Gale, Carole Hagan, Laura Hughes, Perry James, Dr Anna Jansen, Prof Simon Johnson, Dr Larissa Kerecuk, Dr Chris Kingswood (Acting Chair), Emma McManus, Dr Emily Osterweil, Corinne Swainger, Prof. Ben Whalley. Company Information: Tuberous Sclerosis Association company information is available from the Companies House website. Our registered address is CAN Mezzanine, 32-36 Loman Street, London, SE1 0EH Charity Registration: England and Wales No. 2900107 English Registered Charity Number. 1039549 l Scottish Registered Charity No. SC042780

Join our alliance of 200+ patient charities

Join us