We were saddened to hear of the death of Christine Lavery MBE, Chief Executive of the Society for Mucopolysaccharide Diseases (MPS Society), earlier this week.
Christine was an exceptional campaigner and a fierce advocate for patients and families affected by MPS and related diseases. She leaves a tremendous legacy of achievements for her community.
Through the MPS Society, Christine was one of the founders of Genetic Alliance UK (originally Genetic Interest Group). We send our best wishes to Christine’s family, everyone at the MPS Society and to the wider MPS community.
The Genetic Alliance UK team