News & Events

Eurordis alert: critical care guidelines during COVID-19 pandemic

Last Reviewed 15/03/2020

By Jayne Spink

For the most up to date news from us on the current health crisis, please go to our Covid-19 information hub. There, you will be able to find specific information for people with genetic, rare and undiagnosed conditions for England, Wales, Scotland and Northern Ireland.

Eurordis have issued a statement urging policy makers and authorities throughout Europe to take immediate action to protect those living with rare diseases during the COVID-19 pandemic.

Eurordis, the European umbrella body for rare disease organisations, is calling for an immediate revision of all triage guidelines that could lead to discrimination against or reprioritisation of people living with rare disease, in particular in relation to access to intensive care.

Read the full statement

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