Thank you to our members and supporters for contributing to our most successful Pledge for Patients campaign to date. A total of 305 parliamentary candidates from various political parties pledged to support people affected by rare, genetic and undiagnosed conditions should they be elected to parliament. You can view the full results here.
We wouldn’t have been able to achieve this success without your support through spreading the word of the campaign, sharing our messages with your own members, interacting with our social media posts and directly contacting your local parliamentary candidates asking them to sign Pledge for Patients.
- We’re looking forward to working with those elected MPs who pledged to support the rare disease community and we will be inviting them and others to re-establish the All Party Parliamentary Group (APPG) for rare, genetic and undiagnosed conditions.
- We will be hosting an event on Wednesday 26 February for Rare Disease Day 2020 in the House of Commons, and we will be inviting MPs to attend. If you supported our Pledge for Patients campaign, you can ask your MP to attend the event to engage with the rare disease community. See our letter templates here.
- We’re also interested in getting in touch with those who contacted their elected MP during the Pledge for Patients campaign, especially if the MP then signed Pledge for Patients (you can check which MPs signed here). Let us know by emailing our Policy and Public Affairs Officer, Sophie Peet – [email protected] or call 0207 831 0883.
- Remember, you can always contact your local MP and ask to meet with them to discuss your experiences of living with a rare disease and how they might be able to help represent the rare disease community in parliament. If you’re interested, we are able to offer advice and support about how to make the most of your meeting with your MP. Additionally, if you would like to be accompanied by a representative from Genetic Alliance UK, get in touch and we will endeavour to make this happen.