News & Events

Posters from Eurpean Conference on Rare Diseases and Orphan Products

Last Reviewed 24/09/2020

By Miriam Ingram, Genetic Alliance UK

We are delighted to have had three of our posters presented at The European Conference on Rare Diseases and Orphan Products.
Click here to see our poster, Genomic data and the NHS: views of rare disease patients and carers by Amy Hunter et al.
Click here to see our postser, Co-production of the Welsh Rare Disease Research Gateway by Emma Hughes et al.
Click here to see our poster, Developing Rare Resources for Scotland: Utilising methods of co- production to meet the needs of people living with a rare, genetic
or undiagnosed condition and the health professionals involved by Natalie Frankish.

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