News & Events

Successful Partnerships: Conference 2016

Last Reviewed 24/06/2016


27/9/16 11:00 - 27/9/17 16:30


Amnesty International UK,

17-25 New Inn Yard,



At our annual conference this year we’ll be celebrating the innovative and successful partnerships of our members. We aim to showcase the best examples of partnerships with the patients, public, clinicians, commissioners and researchers and to share and learn from your experiences. 

The conference will be an excellent opportunity to:

  • network with people from other patient organisations;
  • learn about best practice in partnership from other members and share your learning;
  • celebrate the success of all our patient groups;
  • foster future collaborative work with other groups.

If you are a member of Genetic Alliance UK, the conference will be free to attend, but you do need to register on Eventbrite. The conference is also open to non-members, researchers, clinicians and industry representatives. If you are a patient organisation and not yet one of our members, you can find more about the benefits of membership here.

Draft Agenda

10.00am Registration and refreshments

11.00am Genetic Alliance UK Annual General Meeting

11.30am Genetic Alliance UK: celebrating our partnership work: Alastair Kent OBE, Genetic Alliance UK Director

Exploring successful partnerships

12.00pm Impact of genomics on healthcare: Dr Gina Radford, Deputy Chief Medical Officer

12.30pm Lunch and networking

2.00 pm  The new challenges of Orphan Drugs in Europe: Sarah Rickwood, IMS Health

2.30 pm  Behçets Centres of Excellence – Partnership with clinicians: Jan Mather, Chair, Behçet’s Patients Centres

3.00 pm Our members’

  • David White – Cavernoma Alliance UK
  • Heather Band – Batten Disease Family Association
  • Gillian Thomas – The carer’s perspective

3.30 pm Refreshments

4.00 pm Partnership between local and national commissioning : Dr Jonathan Fielden, Director of Specialised Commissioning

4.30 pm Drinks and nibbles

Annual General Meeting (AGM)

Our AGM will be held at the beginning of the conference, starting at 11 am. To attend, please register for the conference above.

Trustee Nominations

We will be electing five new trustees during our AGM. If you would like to find out more about what it means to be a trustee or nominate someone to be a trustee, please email us.


If you are a member of Genetic Alliance UK, attendance is free, however, a cheque for £10 is required as a deposit. This cheque will only be cashed if you book and don’t attend. Please send cheques payable to ‘Genetic Alliance UK’ to Mariana Campos, Genetic Alliance UK, Unit 4D Leroy House, 436 Essex Road, London N1 3QP.

Please write the name of the attendee on the back of the cheque.

If you have any questions about our annual conference, please contact Mariana Campos.

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