News & Events

Webinar: Rare Disease Day

Last Reviewed 29/01/2019


6/2/19 12:30 - 6/2/19 13:00



Rare Disease Day is less than a month away and, in the preparation for it, we are running a webinar to help support individuals and organisations on how to get the most out of this awareness day.

Join Farhana Ali, our Public Affairs Manager, to hear about our exciting new concept for Rare Disease Day 2019 and find out how to get involved. This year, you will be able to access and personalise resources, for example, to raise awareness of a specific rare condition, share your personal experience, or add your charity/company logo. During the webinar, we will give you a demonstration of how to access and download the personalised assets.

This webinar is free and open to all Genetic Alliance UK members and Rare Disease UK supporters.

Sign up below:

Join our alliance of 200+ patient charities

Join us