Are you looking to take part in research, help raise awareness or get more involved in the rare community? Take a look at the opportunities that are currently available.
Thoughts into Action
Share in your own words what quality of life means to you by talking to one of the Metabolic Support UK team.
Who can get involved: People living with, or caring for someone with an Inherited Metabolic Disorder (IMD) and who live in the UK or Northern Ireland
Deadline: 30 June 2023
Thoughts into Action
A team of Oxford researchers and clinicians are applying for funding to set up a new Centre of Excellence in Advanced Therapeutics. They seek people to get involved by sharing insights and feedback into their research proposals.
Who can get involved: People affected by a blood or immune disorder, a genetic eye condition, or an inherited neurodevelopmental condition – or a family member of someone with these conditions.
When: Meeting held in Oxford on Friday 28 July, 10:00-11:00 or email ronjon.chakraverty@ndcls.ox.ac.uk to to get involved in other ways
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