Our Members

Genetic Alliance UK was established in 1989 and has over 230 member organisations – will you be our next?

Membership of Genetic Alliance UK is open condition specific organisations and not for profit organisations associated with genetic conditions. You do not need to be a registered charity, but we do ask that you have a governing document, your organisation or group is run by at least two people who are not related, and that you support people in the UK.

Find out more about the benefits of joining us in our 2022/23 membership benefits pack or apply to join us.

The Aarskog Foundation

ACRODYSOSTOSIS SUPPORT AND RESEARCH

ACTA2 Alliance

Action Duchenne

Action Fcs

ACTION MEDICAL RESEARCH

Action On Gilbert's Syndrome

Addison's Disease Self-Help Group

Adrenal Hyperplasia Network

Advocacy For Neuroacanthocytosis Patients

Albinism Fellowship Uk Ireland

Alex Tlc

Alk Positive Uk

Alkaptonuria Society

Alpha-1 Uk Support Group

Alport Uk

If you are looking for support for a specific condition, and cannot see a relevant organistion listed here, please get in touch and we will try to help – email contactus@geneticalliance.org.uk.