DRIVING PROGRESS

Improving outcomes for everyone affected by genetic, rare and undiagnosed conditions through evidence-based influencing and campaigning.

BUILDING OUR COMMUNITY

Supporting and developing communities by providing an excellent range of services to our members, new groups and everyone affected by these conditions.

BUILDING GREATER AWARENESS

Creating the impetus for positive action by increasing understanding within the general public, the health and social care community, and with policy makers.

BUILDING OUR ORGANISATION

Maximising our capacity to deliver a programme of sustainable growth, continued improvement and development.