Skip to main content

Our Team

The team is made up of individuals with a wide range of interests and skills, working in areas such as policy, public affairs, research and public engagement, with backgrounds both in the natural and social sciences.

LAUREN ROBERTS

Director of Engagement and Support

BRIDGET HARPWOOD

ENGAGEMENT AND SUPPORT OFFICER (WALES)

NATALIE FRANKISH

POLICY AND ENGAGEMENT MANAGER - SCOTLAND

EMMA HUGHES

POLICY AND ENGAGEMENT MANAGER - WALES

Our Trustees

We are governed by a Board of Trustees made up of representatives of our patient organisations who set the charities strategic aims and monitor the delivery of our objectives.

SUE MILLMAN

Sue Millman has spent her career in the voluntary sector. Initially Sue worked with people who were homeless or needing support in their housing situation, including refugees, Read More »

Read More »

GLORIA CLARK

Gloria Clark currently works as a Project Manager for the Patients Association, running projects for healthcare organisations directed at involving patients and improving care. She was formerly the elected Read More »

Read More »

PHILLIPPA FARRANT

Phillippa has been involved with several charities over the years and has knowledge of neuromuscular conditions, along with experiences of meeting people from different sections of the Read More »

Read More »

SARA HUNT

Sara Hunt is the CEO and founder of ALD Life, a charity supporting sufferers of the rare and terminal genetic brain disorder adrenoleukodystrophy (ALD). Both of Sara’s Read More »

Read More »

CELINE LEWIS

Celine is a behavioural scientist, currently based at Great Ormond Street Hospital. Her research focuses on the lived experience of patients and families affected by rare genetic Read More »

Read More »

JULIE WOOTTON

Julie has been a full-time volunteer for almost 20 years and has extensive experience of working with researchers, those delivering services to families and other non-profit organisations. Read More »

Read More »

SARAH WYNN

Sarah Wynn has a PhD in Genetics from Imperial College London and nine years postdoctoral research experience. Sarah’s family are members of Unique. As Information Officer for Read More »

Read More »

Join our alliance of 200+ SUPPORT ORGANISATIONS AND charities