Our Trustees

We are governed by a Board of Trustees made up of representatives of our member organisations. They set our strategic aims, monitor the delivery of our objectives and are responsible for all aspects of our governance.

Greg Stevenson

Greg has worked in the pharmaceutical industry since graduating from the University of St Andrews.

Dr Shehla Mohammed

Shehla is a paediatric clinical geneticist with 28 years’ experience in rare genetic conditions.

Lara Bloom

Lara Bloom is the President and CEO of The Ehlers-Danlos Society.

Toby Hannam

Toby is a health policy and public affairs expert with a decade working in consultancy and in the UK


Liz was Head of Strategic Planning and Clinical Priorities with the Scottish Government Health & Soc


Sue Millman has spent her career in the voluntary sector, becoming CEO of numerous charities.


David Ramsden has been Chief Executive of the Cystic Fibrosis Trust since December 2016.


Gloria Clark has spent much of her career enabling the voice of patients and consumers to be heard.


Phillippa has served two terms as a Trustee for MDUK and been involved with several charities.

If you would like to find out more about being a Trustee at Genetic Alliance UK please email contactus@geneticalliance.org.uk.