Our trustees

Greg Stevenson

Greg has worked in the pharmaceutical industry since graduating from the University of St Andrews.

Shehla is a paediatric clinical geneticist with 28 years’ experience in rare genetic conditions.

Lara Bloom is the President and CEO of The Ehlers-Danlos Society.

Toby is a health policy and public affairs expert with a decade working in consultancy and in the UK

Liz was Head of Strategic Planning and Clinical Priorities with the Scottish Government Health & Soc

Sue Millman has spent her career in the voluntary sector, becoming CEO of numerous charities.

David Ramsden has been Chief Executive of the Cystic Fibrosis Trust since December 2016.

Gloria Clark has spent much of her career enabling the voice of patients and consumers to be heard.

Phillippa has served two terms as a Trustee for MDUK and been involved with several charities.