Patient and public involvement at NICE

We welcome the efforts by the National Institute for Health and Care Excellence (NICE) to improve how it involves patient, service users and the public in its work. We were among the stakeholders who raised concerns in this area as part of the Department of Health’s triennial review of NICE in 2015, which prompted NICE to carry out the piece of work which led to these proposals.

The majority of the proposals are positive and will increase NICE’s transparency and accountability through increasing the involvement of patients, service users and the public. Indeed, many of the proposals are consistent with recommendations made in our Patient Charter “Patient perspectives and priorities on NICE’s evaluation of highly specialised technologies”, published in April 2014. However, we are of the opinion that they do not go quite far enough.