The Public Health Outcomes Framework (PHOF) is used as a benchmark for progress in public health. The PHOF was first published in 2012 with the intention of providing an overview of public health outcomes at local and national level through a broad range of indicators of what is considered as public health. Three years on, the Department of Health endeavor to ‘refresh’ the framework’s indicators to make sure that what is measured is as relevant and useful as possible.
In our response to the consultation we argue that although the indicators are designed to cover the ‘full spectrum’ of those areas of public health that are measurable, a blind spot exists in regard to rare conditions. This means that while some aspects of public health (such as mental health and substance misuse) are afforded multiple indicators, the 3.5 million individuals in the UK with a rare disease are overlooked.
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