Developing genetics training for primary care practitioners

Genetic Alliance UK is a partner in the Gen-Equip project – a project combining education, primary care and genetics. The aim of this project is to enable health professionals who are working in primary care to update their knowledge and skills in genetics.

Why are we involved in this project?

  • There is evidence that patients at risk of genetic disease may not be recognised, while those who seek advice about the risks of rare diseases may not be referred or managed appropriately by healthcare professionals;
  • Primary care physicians lack knowledge of genetics relevant for daily practice, lack oversight of genetic testing and report that they feel inadequately trained  to deliver genetic testing;
  • Genetics education is only very slowly starting to become a standard part of medical training.


What are the goals of this project?

  • To deliver innovative training and education that can be accessed by practitioners, online, without cost or travel;
  • To develop a ‘CareBundle’ (novel, accessible and online training/resources) and a ‘Train the Trainers’ model to enable physicians to train other doctors;
  • To translate and deliver training and resources in six countries;
  • To make resources available online for use by other practitioners beyond the life of the project.

How is the education provided?

Education is provided via a set of online modules, webinars and tools for daily clinical practice.

The educational modules have been assessed and accredited for CPD by the European Specialist Nurses Organisation and the Royal College of General Practitioners.

The courses are available in English, Czech, Dutch, Icelandic, Italian and Portuguese.

Who can access the courses?

Any health professional who wishes to improve their knowledge and skills can access the modules, free of charge, via the Gen-Equip website.

Which conditions do the modules cover?

  • Familial breast and ovarian cancer
  • Inherited colon cancer
  • Inherited cardiac conditions
  • Familial hypercholesterolaemia
  • The child with developmental delay
  • Care of women before and during pregnancy issues (4 modules)

The education programme is highly interactive, with videos and questions throughout each module. Pre and post-nodule quizzes are included and those who complete successfully are issued with a  certificate of completion.

You can do one, several or all of the modules to update their knowledge and obtain recognition to demonstrate they have undertaken CPD.

How is Genetic Alliance UK contributing?

We are contributing to this project with our experience of representing patients’ interests on different platforms, both in the UK and in the EU. We hope to achieve the long-term outcome of improvement in the care of patients with genetic conditions or concerns.

If you want more information about the Gen-Equip project, please check the leaflet or the website or contact our Public Engagement and Project Manager, Mariana Campos.