The European Patients’ Academy on Therapeutic Innovation (EUPATI) project is providing training and online resources for patients and the public who wish to know more about how medicines (drugs) are developed. It is funded by the Innovative Medicines Initiative and brings together 33 European organisations including patient groups, industry and academics. Genetic Alliance UK has been involved since the beginning of the project.
- developed user-friendly online information on the research and development of medicines, through a multi-lingual ‘toolbox’ on their webiste;
- built expert capacity in patient advocates, through provision of intensive training, delivered online and face-to-face;
- developed frameworks to support patient involvement with industry, ethics committees, regulatory authorities, health technology assessment bodies and ethics committees;
- fostered national activities to help patients become more engaged with medicines development.
Genetic Alliance UK has contributed to the development of the syllabus and content; to development of the framework to support patient involvement in health technology assessment; and to the steering of the project in general through membership of the Executive Committee.
If you would like more information about the project please email our Director of Research, Amy Hunter, or call the office on 020 7704 3141.