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  • About us
    • What we do
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  • News
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    • Reproductive options
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  • Information
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    • Learn about genetics
    • Services and testing
    • Research and innovation
  • Get involved
    • Join our team
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      • Ways to get involved
      • Our current corporate partners
      • Working with industry policy
      • Ethical collaboration policy
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Our Work

We work on a variety of issues that families and individuals with genetic conditions face. We aim to provide information, support families and influence the services needed by these patients. We also work to add patient voice into debates that matter to our community. Our work falls into different categories:  reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.

  • Reproductive Options
  • Diagnosis
  • Medical Research
  • Healthcare and Delivery
  • Access To Treatment
  • Living and Education
NHS England Generic Policies consultation
England

NHS England Generic Policies consultation

Consultation looking at the way NICE evaluates medicines
Policy

Consultation looking at the way NICE evaluates medicines

Webinar: Proposed changes to the appraisal of specialised treatments
UK

Webinar: Proposed changes to the appraisal of specialised treatments

Individual patient funding requests in Wales
Wales

Individual patient funding requests in Wales

Abortion (Disability Equality) Bill briefing
Parliamentary

Abortion (Disability Equality) Bill briefing

All Party Parliamentary Group hearing on access to medicines in England
Parliamentary

All Party Parliamentary Group hearing on access to medicines in England

Refreshing Public Health Outcomes Framework
Policy

Refreshing Public Health Outcomes Framework

Joint response to the IGARD draft terms of reference
Policy

Joint response to the IGARD draft terms of reference

Response to the Caldicott Review
Policy

Response to the Caldicott Review

The ethics of non invasive prenatal testing
Policy

The ethics of non invasive prenatal testing

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  • NHS Genetic Services in the UK
  • What is a genetic test?
  • Finding information about my condition
  • Finding a support group
  • NHS Genetic Services in the UK
  • What is a genetic test?
  • Finding information about my condition
  • Finding a support group
Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:
  • Westminster APPG
  • Welsh CPG
  • Scottish CPG
  • Westminster APPG
  • Welsh CPG
  • Scottish CPG
  • Ethical Collaboration Policy
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  • Complaints Policy
  • Working With Life-sciences Industries Policy
  • Disclaimer
  • Ethical Collaboration Policy
  • Privacy Policy
  • Donation Policy
  • Complaints Policy
  • Working With Life-sciences Industries Policy
  • Disclaimer

© Genetic Alliance UK 2021
Registered charity numbers: 1114195 & SC039299. Registered company number: 05772999

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