Neil is a former trustee of Haemochromatosis UK, where he now serves as Chief Executive (appointed June 2019). He previously led a rare disease charity that supports people affected by adrenal insufficiency. He was awarded the National Patient Safety Learning Award, and was a finalist in the AbbVie Better Health Awards, having launched a project as a volunteer to improve nursing best practice for people affected by haemochromatosis, myeloproliferative disorders and rare cancers. Neil is currently a trustee of the British Liver Trust where he advises on volunteer management and fundraising.