Sondra Butterworth

Sondra’s passion comes from her personal experience of the effects of rare conditions within her own family, and from having over 10 years’ experience working for charities. This includes working with BME families and eight years supporting individuals and families with the rare genetic skin condition epidermolysis bullosa. Sondra has undertaken a PhD research study into the relationship between quality of life and social support, for people living with rare genetic conditions. She is currently a patient representative member of PEG {Genetic Alliance UK Patient Empowerment Group). She has a background in nursing, education and community psychology as well as specialist knowledge in equality, diversity and safeguarding.

By |December 2nd, 2019|Comments Off on Sondra Butterworth

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