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European Reference Network Conference

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Protect European Reference Networks

eu

Protect European Reference Networks

Obstacles to patients gaining access to advanced therapies

policy

Obstacles to patients gaining access to advanced therapies

Brexit: the impact on rare disease

policy

Brexit: the impact on rare disease

The benefits of EU membership for our community

policy

The benefits of EU membership for our community

Treatment of Adrenal Insufficiency in Neonates and Infants (TAIN)

research

Treatment of Adrenal Insufficiency in Neonates and Infants (TAIN)

Resources about how medicines are developed (EUPATI)

research

Resources about how medicines are developed (EUPATI)

Public perspectives on neuro-enhancement

research

Public perspectives on neuro-enhancement

Use of animals in medical research

research

Use of animals in medical research

Joint statement on the IVD medical devices regulation

parliamentary

Joint statement on the IVD medical devices regulation

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Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:

  • Westminster APPG
  • Scottish CPG
  • Welsh CPG

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Genetic Alliance UK registered charity numbers: 1114195 & SC039299.

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