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  • Genetic Alliance UK /
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  • Policy

Protect European Reference Networks

eu

Protect European Reference Networks

Resetting the model

policy

Resetting the model

Patient Charter on Newborn Screening

policy

Patient Charter on Newborn Screening

THE NICE TECHNOLOGY APPRAISAL PROGRAMME: OUR RESPONSE

policy

THE NICE TECHNOLOGY APPRAISAL PROGRAMME: OUR RESPONSE

Responses to Parliamentary Inquiries: Brexit and Genome Editing

parliamentary

Responses to Parliamentary Inquiries: Brexit and Genome Editing

Patient and public involvement at NICE

policy

Patient and public involvement at NICE

Genomics and genome-editing inquiry evidence

parliamentary

Genomics and genome-editing inquiry evidence

Pledge for Patients 2015-16

uk

Pledge for Patients 2015-16

Webinar: Proposed changes to the appraisal of specialised treatments

uk

Webinar: Proposed changes to the appraisal of specialised treatments

Individual patient funding requests in Wales

wales

Individual patient funding requests in Wales

Abortion (Disability Equality) Bill briefing

parliamentary

Abortion (Disability Equality) Bill briefing

All Party Parliamentary Group hearing on access to medicines in England

parliamentary

All Party Parliamentary Group hearing on access to medicines in England

Research on non-invasive prenatal testing

research

Research on non-invasive prenatal testing

The benefits of EU membership for our community

policy

The benefits of EU membership for our community

Cancer patients’ views on genome sequencing

research

Cancer patients’ views on genome sequencing

Public perspectives on neuro-enhancement

research

Public perspectives on neuro-enhancement

Access to medicines for rare diseases in Scotland

policy

On Wednesday 23 March 2016, we launched our new Patient […]

My Condition, My DNA

policy

My Condition, My DNA

The Genomics Conversation

research

The Genomics Conversation

Mitochondrial donation regulation consultation

policy

Mitochondrial donation regulation consultation

Use of animals in medical research

research

Use of animals in medical research

NHS England’s commissioning of medicines for rare diseases

policy

NHS England’s commissioning of medicines for rare diseases

NICE’s evaluation of highly specialised technologies

policy

NICE’s evaluation of highly specialised technologies

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Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:

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