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  • Genetic Alliance UK /
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  • UK

Mitochondrial Disease Priority Setting Partnership

research

Mitochondrial Disease Priority Setting Partnership

Resetting the model

policy

Resetting the model

Patient Charter on Newborn Screening

policy

Patient Charter on Newborn Screening

genome sequencing and the nhs

research

genome sequencing and the nhs

CoOrdiNated Care Of Rare Diseases (CONCORD)

research

CoOrdiNated Care Of Rare Diseases (CONCORD)

THE NICE TECHNOLOGY APPRAISAL PROGRAMME: OUR RESPONSE

policy

THE NICE TECHNOLOGY APPRAISAL PROGRAMME: OUR RESPONSE

Responses to Parliamentary Inquiries: Brexit and Genome Editing

parliamentary

Responses to Parliamentary Inquiries: Brexit and Genome Editing

Understanding genome editing

research

Understanding genome editing

Pledge For Patients 2017

policy

Pledge For Patients 2017

Genomics and genome-editing inquiry evidence

parliamentary

Genomics and genome-editing inquiry evidence

Pledge for Patients 2015-16

uk

Pledge for Patients 2015-16

Talking about genome editing

research

Talking about genome editing

Response to the Caldicott Review

policy

Response to the Caldicott Review

The ethics of non invasive prenatal testing

policy

The ethics of non invasive prenatal testing

Research on non-invasive prenatal testing

research

Research on non-invasive prenatal testing

Obstacles to patients gaining access to advanced therapies

policy

Obstacles to patients gaining access to advanced therapies

Brexit: the impact on rare disease

policy

Brexit: the impact on rare disease

The benefits of EU membership for our community

policy

The benefits of EU membership for our community

Hidden Costs of Rare Disease Project

research

Hidden Costs of Rare Disease Project

Cancer patients’ views on genome sequencing

research

Cancer patients’ views on genome sequencing

Public perspectives on neuro-enhancement

research

Public perspectives on neuro-enhancement

Developing genetics training for primary care practitioners

eu

Developing genetics training for primary care practitioners

HRA UK policy framework for health and social care research

policy

HRA UK policy framework for health and social care research

My Condition, My DNA

policy

My Condition, My DNA

Genome Editing: What does it mean for patients?

policy

Genome Editing: What does it mean for patients?

The Genomics Conversation

research

The Genomics Conversation

Consultation on non invasive prenatal testing

policy

Consultation on non invasive prenatal testing

Mitochondrial donation regulation consultation

policy

Mitochondrial donation regulation consultation

Use of animals in medical research

research

Use of animals in medical research

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Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:

  • Westminster APPG
  • Scottish CPG
  • Welsh CPG

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Genetic Alliance UK registered charity numbers: 1114195 & SC039299.

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