In my role as Senior Researcher, I work closely with patients and families to improve our understanding about what it is like to live with a rare and/or genetic condition. My main focus is conducting research with University College London for the NIHR funded CONCORD Study, which aims to improve how care is coordinated for those affected by rare conditions. I have completed a PhD, exploring the identities of parents who have a child with an undiagnosed genetic condition. I am passionate about bridging the gap between research, policy and practice in this field – so that the findings from our research studies are relevant and useful to our patient communities.

By |April 30th, 2018|Comments Off on AMY SIMPSON

About the Author:

Join our alliance of 200+ patient charities

Join us