As Communications and Support Manager for SWAN UK, I work to raise awareness of undiagnosed genetic conditions and the support that SWAN UK offers. I manage the SWAN UK communications channels and work closely with families to share their experiences. I also manage relationships with external stakeholders including media, charitable organisations and healthcare professionals. I am part of the wider Genetic Alliance UK communications team and help make families and professionals aware of opportunities they can get involved in and new developments which affect the undiagnosed community. I am the first point of contact for SWAN UK enquiries and enjoy organising family and information events. I have a background in journalism, marketing and events and am passionate about giving people a platform to tell their stories.