Our video content

A selection of Rare Disease Day videos, including from our Stories Behind the Stats news-style programme with ITN Business.

Stories Behind the Stats news-style with ITN Business

A rare condition is one that affects fewer than one in 2,000 people. Although rare conditions are individually rare, they are collectively common. There are currently over 7,000 rare conditions, with new ones regularly identified through scientific progress. 8 out of 10 of these rare conditions are caused by a change to someone’s genetic code.

1 in 17 people are affected by a rare condition at some point in their lifetime. In the UK the number totals over 3.5 million people. But statistics don’t give the full picture, ‘Rare Conditions: The Stories Behind the Stats’ looks at the people and the lives behind the numbers. Throughout the programme the patients and their families, the health professionals and the thought leaders tell their own stories to help raise awareness of the realities of living with a rare condition.

Intro and animation

Our studio interview

Featuring our CEO, Louise Fish and Marian Adejokun who talks about her experience with Stevens-Johnson Syndrome.

Partner films

Stories Behind the Stats includes sponsored editorial profiles. Take a look below.

Mirum Pharmaceuticals showcase its work in bringing relief, support and resources to families living with Alagille Syndrome.

Sciensus discuss the communities enabling people and their families to advocate and support one another in a secure, safe environment regardless of geography or language.

Vertex Pharmaceuticals share its unique strategy that prioritises innovation, with hopes to provide next generation medicines to benefit those living with rare and serious diseases.

HRA Pharma shares how it is raising awareness, as well providing treatment for rare conditions such as Cushing Syndrome.

You can watch the full programme here