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Introduction to genetics & genetic conditions
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Latest from Genetic Alliance UK

Genetic Alliance UK features in the New Scientist

News

Genetic Alliance UK features in the New Scientist

Posters from Eurpean Conference on Rare Diseases and Orphan Products

News

Poster with findings from the views of rare disease patients and carers about genomic data and the NHS

The start of our Timothy Syndrome journey

News

The start of our Timothy Syndrome journey

We are recruiting: Director of Fundraising

News

We are recruiting: Director of Fundraising
Tweets by @geneticall_uk
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Our Work

We work on a variety of issues that families and individuals with genetic conditions face. We aim to provide information, support families and influence the services needed by these patients. We also work to add patient voice into debates that matter to our community. Our work falls into different categories:  reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.

View more work

Protect European Reference Networks

Our Work

Protect European Reference Networks

Resetting the model

Our Work

Resetting the model

Patient Charter on Newborn Screening

Our Work

Patient Charter on Newborn Screening

genome sequencing and the nhs

Our Work

genome sequencing and the nhs
Our Members

Our members can help

We are an alliance of over 200 patient organisations. We work with our members on campaigns, consultations and engagement projects to ensure our work accurately reflects the needs and concerns of patients and families affected by all types of genetic conditions.

Our mission is to ensure that high quality services, information and support are provided to all. We actively support research and innovation across the field of genetic medicine.

All our members

Join our alliance of 200+ patient charities

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Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions:

  • Westminster APPG
  • Scottish CPG
  • Welsh CPG

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© Genetic Alliance UK 2018
Genetic Alliance UK registered charity numbers: 1114195 & SC039299.

Registered company number: 05772999