Rare DiseaseDay, taking place on 29 February 2024. A blue border with pink and green paint marks surround the text.
Announcement banner for Genetic Alliance UK's collaboration with ITN Business. Four images of people of different genders, ages and ethnicities are seen in each corner and the title of the programme, 'Rare Conditions: The stories behind thee stats' is seen in the centre.
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The latest news from Genetic Alliance UK...

Our Rare Disease Day events

Run for Charity

Join us in celebrating our achievements over the last year

Genetic Alliance UK and ITN Business to launch ‘Rare Conditions: The Stories Behind the Stats’

Welcome to our new Trustees

Our Work

We work on a variety of issues that families and individuals with genetic conditions face. We aim to provide information, support families and influence the services needed by these patients. We also work to add patient voice into debates that matter to our community. Our work falls into different categories: reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.

Our Members Can Help

Our members can help

We are an alliance of over 200 patient organisations. We work with our members on campaigns, consultations and engagement projects to ensure our work accurately reflects the needs and concerns of patients and families affected by all types of genetic conditions.

Our mission is to ensure that high quality services, information and support are provided to all. We actively support research and innovation across the field of genetic medicine.