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Featured

Care coordination report

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We have worked with our members to demonstrate the value of care coordination and the impact of its absence. The report shows the value of care coordination can be seen across five themes.

A family playing with each other. A mum is holding a child while another, slightly older, child stand beside playing with the girl in her mums arms. They all look amongst each other on a bright sunny day.

Rare Resources: Wales

Date:

The Rare Resources guides have been produced by Genetic Alliance UK for families who have recently received a diagnosis of a genetic or rare condition, are on the journey to a diagnosis or who have been told their child’s condition is so rare they might not get a diagnosis.

A family playing with each other. A mum is holding a child while another, slightly older, child stand beside playing with the girl in her mums arms. They all look amongst each other on a bright sunny day.

Rare Resources: Scotland

Date:

The Rare Resources guides have been produced by Genetic Alliance UK for families who have recently received a diagnosis of a genetic or rare condition, are on the journey to a diagnosis or who have been told their child’s condition is so rare they might not get a diagnosis.