News

Our Rare Disease Day 2025 event pages are now live

Published: 10/01/2025

To recognise Rare Disease Day 2025, our community will be coming together at these events with parliamentarians, health professionals, policymakers, researchers, people affected by rare conditions and support organisations.

At these events we will also launch ‘More than you can imagine: an anthology of rare experiences’ and speakers will include people affected by rare conditions and leading policy-makers. Dates, time and links to each event can be found below.

Please be aware, tickets for these events are reserved quickly so if you are hoping to attend, please register promptly.

Keep our events free

All of our information, policy and campaign events are completely free to attend. However, any donation, no matter what size, will help us to continue our mission to ensure that people and families living with rare, genetic or undiagnosed conditions have access to a final diagnosis, coordinated care and specialist care and treatment.

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