Genetic Alliance UK’s goal of improving the lives of 3.5 million people in the UK living with genetic and rare conditions is driven by the passion and expertise of our committed team. If you share our values and want to make a real difference, we want to hear from you.
We seek empathetic, skilled and passionate professionals who can help us achieve the vision and values set out in our current five-year strategy.
Genetic Alliance UK is an equal opportunities employer. Employment and progression are based solely on merit, competence and potential, and we welcome individuals who can bring diverse perspectives and professional expertise to our team. We strive to create a workplace where everyone feels valued, respected and able to achieve their full potential.
Many of our trustees and staff bring lived experience of genetic and rare conditions, either personally or through a close family member. We are a level 1 disability committed employer (find out more about the Disability Confident scheme here) and we are happy to discuss flexible working arrangements for staff who need adjustments to support them at work or have caring responsibilities.
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Senior Policy and Research Officer
We are seeking an inquisitive, collaborative and adaptable new member of the Genetic Alliance UK team. Our new Senior Policy and Research Officer will bring the voice of people living with genetic, rare and undiagnosed conditions to the centre of innovative research programmes and cutting-edge policy discourse.
Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Our member organisations and the people they support are at the heart of everything we do. We advocate for fast and accurate diagnosis, good quality care and access to the best treatments.
This is a key role working with both our small policy and research teams to facilitate connections with our membership and the wider genetic and rare community. For the policy team you will ensure people living with specific conditions have a say in preimplantation genetic testing licensing, in decisions to fund innovative medicine and cover ethically complex issues such as reproductive choice and genetics and insurance. For the research team you will bring our community into the delivery of key programmes such as Rare Disease Research UK, and LifeArc’s Rare Disease Centres. It is an ideal role for a graduate with early career or post-graduate experience wishing to apply their skills to have a real impact on people affected by genetic, rare and undiagnosed conditions.
Full time: 5 days / 35 hours per week
Home based with potential in-person meetings depending on your location. Flexible working patterns will be considered.
Benefits:
- Generous employer pension contribution.
- Generous annual leave allowance of 25 days (pro rata) plus bank holidays and Christmas closure.
- Flexible working patterns.
- Free access to our Employee Assistance Programme.
The full job description and person specification is available here.
How to apply:
To apply please email [email protected] with your CV and a cover letter by the end of Sunday 28 July for the attention of Nick Meade, Director of Policy.
- In your cover letter please outline your experience, why you are interested in this role, your location and how you meet the person specification.
- Please save your documents as YourName.SPRO.CV and YourName.SPRO.CoverLetter and use SPRO Application as the email subject line.
- Please note that applications which are just generic cover letters or CVs without covering letters will not be considered.
Candidates selected for an interview will be contacted by close of business Thursday 8 August. Interviews will be held via zoom on Tuesday 13, Wednesday 14, Tuesday 20 and Wednesday 21 August. If you have a preference for one of these days please give details in your application.
Due to capacity restrictions we will not be able to provide feedback for candidates not selected for an interview. As the successful candidate will be handling sensitive health data and potentially meeting vulnerable individuals, successful candidates will have to pass a disclosure and barring security check.