Genetic Alliance UK’s goal of improving the lives of 3.5 million people in the UK living with genetic and rare conditions is driven by the passion and expertise of our committed team. If you share our values and want to make a real difference, we want to hear from you.
We seek empathetic, skilled and passionate professionals who can help us achieve the vision and values set out in our current five-year strategy.
Genetic Alliance UK is an equal opportunities employer. Employment and progression are based solely on merit, competence and potential, and we welcome individuals who can bring diverse perspectives and professional expertise to our team. We strive to create a workplace where everyone feels valued, respected and able to achieve their full potential.
Many of our trustees and staff bring lived experience of genetic and rare conditions, either personally or through a close family member. We are a level 1 disability committed employer (find out more about the Disability Confident scheme here) and we are happy to discuss flexible working arrangements for staff who need adjustments to support them at work or have caring responsibilities.
If no vacancies are listed at the moment please check back regularly, or consider subscribing to our updates or getting in touch with us.
Current vacancies
Treasurer
WANTED: financially ‘savvy’ individual to improve the lives of over 3.5 million people
Genetic Alliance UK is seeking a Treasurer to join our committed and enthusiastic board at an exciting time for the charity. The treasurer plays a vital role in conjunction with our Finance and Governance Committee to ensure robust and sustainable finances for the charity.
The treasurer plays a vital role in conjunction with our Finance and Governance Committee to ensure robust and sustainable finances for the charity. The role includes:
- Providing the Board with transparency and clarity on our finances to ensure a clear understanding of controls in place and risks being managed.
- Working closely with the charity’s independent auditor to provide assurance for the Board.
- Gaining assurance that the charity keeps proper accounts.
- Reviewing the charity’s financial performance.
- Ensuring that the charity’s senior management has in place appropriate policies for finance and investment, along with robust and effective financial controls.
- Overseeing the charity’s financial risk-management process.
- Liaising with senior management and financial consultants.
- Reporting on financial matters to the members
- Working with management and trustees to set and monitor the budget
- Chairing our Finance and Governance committee, which meets online four times a year.
The Treasurer is also a member of our Trustee Board, and all members are asked to:
- Attend four Board meetings each year (at least three meetings are online, with one in-person Board meeting each year).
- Attend one in-person Board Strategy Away Day each year.
- Attend the one-hour Annual General Meeting in autumn each year.
You can find out more about the role of a trustee from the Charity Commission here.
The roles are voluntary (unpaid), but we reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK business.
Most of our trustees are appointed by Member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application. We will provide full induction for successful candidates.
You can apply by sending a CV and a short covering statement (maximum 300 words) to [email protected]
If you would like an informal conversation with the Chair in advance of applying, please email [email protected]
Apply by 12:00 noon on Friday 3 January 2025
Interviews will take place via Zoom on a date to be arranged in January/February 2025.
Successful candidates will be co-opted to the Board prior to election at the AGM in September 2025.
Genetic Alliance UK is a Disability Confident Committed employer.
We are an alliance of over 220 charities and support groups with an ambitious new strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. You can find out more about our work from our website at geneticalliance.org.uk.
We particularly welcome applications from people with lived experience of rare or genetic conditions either directly or through a close relationship/connection. People from minority ethnic backgrounds and men are currently under-represented on the Board, and we would love to hear from applicants who can bring these perspectives to our work.
Trustees
WANTED: Trustees to support over 3.5 million people living with genetic, rare and undiagnosed conditions
Genetic Alliance UK is looking for up to 3 Trustees to join our enthusiastic and committed Board during 2025, as part of our Trust Board succession planning. We are looking for up to three individuals who can bring expertise and diverse perspectives to shape our work. We are particularly keen to recruit people with skills and knowledge in one or more of the following areas:
- Patient Involvement
- Fundraising and Income Generation
- Policy
- The NHS
- Genomics
- Life Sciences
All postholders will be appointed for a first term of three years, with a possible further three years. In exceptional circumstances this may extend up to a maximum of nine years.
You can find out more about the role of a trustee from the Charity Commission here.
The roles are voluntary (unpaid), but we reimburse reasonable expenses necessary for attending meetings and taking part in Genetic Alliance UK business.
Most of our trustees are appointed by Member organisations. If you have a connection with one of the charities in our alliance or the conditions they support, please mention this on your application. We will provide full induction for successful candidates.
The Trustees play a key role in leading and supporting the charity. We ask them to:
- Attend four Board meetings each year (at least three meetings are online, with one in-person Board meeting each year)
- Attend one in-person Board Strategy Away Day each year
- Attend the one-hour Annual General Meeting in autumn each year
- Consider joining one of our sub-committees, with up to four online meetings each year
You can apply for either role by sending a CV and a short covering statement (maximum 300 words) to [email protected]
If you would like an informal conversation with the Chair in advance of applying, please email [email protected]
TRUSTEES: apply by 12:00 noon on Friday 20 December 2024
Interviews will take place via Zoom on a date to be arranged in January/February 2025.
Successful candidates will be co-opted to the Board from April 2025 prior to election at the AGM in September 2025.
Genetic Alliance UK is a Disability Confident Committed employer.