Genetic Alliance UK’s goal of improving the lives of 3.5 million people in the UK living with genetic and rare conditions is driven by the passion and expertise of our committed team. If you share our values and want to make a real difference, we want to hear from you.
We seek empathetic, skilled and passionate professionals who can help us achieve the vision and values set out in our current five-year strategy.
Genetic Alliance UK is an equal opportunities employer. Employment and progression are based solely on merit, competence and potential, and we welcome individuals who can bring diverse perspectives and professional expertise to our team. We strive to create a workplace where everyone feels valued, respected and able to achieve their full potential.
Many of our trustees and staff bring lived experience of genetic and rare conditions, either personally or through a close family member. We are a level 1 disability committed employer (find out more about the Disability Confident scheme here) and we are happy to discuss flexible working arrangements for staff who need adjustments to support them at work or have caring responsibilities.
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Engagement and Support Officer – Rare Resources Scotland
We are seeking an empathetic, proactive, and collaborative new member of the Genetic Alliance UK team. Our new Engagement and Support Officer will deliver a 6-month pilot project to deliver events and create a supportive community for families in Scotland living with genetic, rare, and undiagnosed conditions.
Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare, and undiagnosed conditions in the UK. Our members and the people they support are at the heart of everything we do. We advocate for fast and accurate diagnosis, good quality care, and access to the best treatments. We actively support progress in research and engage with decision-makers and the public about the challenges faced by our community.
This vital role, collaborating closely with our Head of Scotland and Public Affairs, will be instrumental in delivering a groundbreaking pilot project that offers new support to these families. This unique chance allows you to work directly with those affected by genetic, rare, and undiagnosed conditions, expand your professional networks, and help deliver a brand new pilot support service. Key responsibilities include assisting with the development of Scotland-specific support and information services, delivering a programme of in-person and online outreach activities and events, and disseminating our early intervention information toolkit – Rare Resources for Scotland. You will also assist with the facilitation of Genetic Alliance UK’s ‘Contact Us’ information service and work in partnership with key local organisations to deliver holistic support.
This role would be a great fit for someone with a background in delivering engagement events and providing information services within a charity, healthcare, local authority or social care setting.
Part-time: 0.8 FTE (4 days / 28 hours per week) for a six month period.
Home based with travel within Scotland. Occasional evening and weekend work, including some overnight stays, may be required.
The successful candidate will be required to complete a Disclosure Scotland CHECK.
Benefits:
- Generous employer pension contribution.
- Generous annual leave allowance of 25 days (pro rata) plus bank holidays and Christmas closure.
- Flexible working patterns.
- Free access to our Employee Assistance Programme.
View the full job description and person specification.
How to apply:
To apply please email [email protected] with your CV and a cover letter by 17:00 on Wednesday 20 August 2025 for the attention of Natalie Frankish, Head of Scotland and Public Affairs.
- In your cover letter please outline your experience, why you are interested in this role, your location and how you meet the person specification.
- Please save your documents as YourName.RRESO.CV and YourName.RRESO.CoverLetter and use RRESO Application as the email subject line.
- Please note that applications which are just generic cover letters or CVs without covering letters will not be considered.
Candidates selected for an interview will be contacted by close of business by Friday 22 August. Interviews will be held via zoom on Wednesday 27 August and Thursday 28 August. If you have a preference for one of these days please give details in your application.
Due to capacity restrictions we will not be able to provide feedback for candidates not selected for an interview. As the successful candidate will be handling sensitive health data and potentially meeting vulnerable individuals, successful candidates will have to pass a disclosure and barring security check.