Genetic Alliance UK’s goal of improving the lives of 3.5 million people in the UK living with genetic and rare conditions is driven by the passion and expertise of our committed team. If you share our values and want to make a real difference, we want to hear from you.
We seek empathetic, skilled and passionate professionals who can help us achieve the vision and values set out in our current five-year strategy.
Genetic Alliance UK is an equal opportunities employer. Employment and progression are based solely on merit, competence and potential, and we welcome individuals who can bring diverse perspectives and professional expertise to our team. We strive to create a workplace where everyone feels valued, respected and able to achieve their full potential.
Many of our trustees and staff bring lived experience of genetic and rare conditions, either personally or through a close family member. We are a level 1 disability committed employer (find out more about the Disability Confident scheme) and we are happy to discuss flexible working arrangements for staff who need adjustments to support them at work or have caring responsibilities.
If no vacancies are listed at the moment please check back regularly, or consider subscribing to our updates or getting in touch with us.
Trustees at Genetic Alliance UK
Genetic Alliance UK is looking for three new trustees as well as a new chair due to existing board members having served the maximum time allowed.
- Location: Remote
- Salary: Unpaid voluntary role, with reasonable expenses paid
- Closing date: Monday 15 June 2026 at 12:00
We are an alliance of over 220 charities and support groups with an ambitious strategy focused on working together to improve the lives of the 1 in 17 people in the UK affected by rare, genetic or undiagnosed conditions. We campaign for timely diagnosis, better coordinated care, and improvements in screening, testing, services and treatment.
We are seeking candidates with a personal or professional passion for driving these improvements, who can bring relevant skills and experience to help shape our work.