Genetic Alliance UK’s goal of improving the lives of 3.5 million people in the UK living with genetic and rare conditions is driven by the passion and expertise of our committed team. If you share our values and want to make a real difference, we want to hear from you.
We seek empathetic, skilled and passionate professionals who can help us achieve the vision and values set out in our current five-year strategy.
Genetic Alliance UK is an equal opportunities employer. Employment and progression are based solely on merit, competence and potential, and we welcome individuals who can bring diverse perspectives and professional expertise to our team. We strive to create a workplace where everyone feels valued, respected and able to achieve their full potential.
Many of our trustees and staff bring lived experience of genetic and rare conditions, either personally or through a close family member. We are a level 1 disability committed employer (find out more about the Disability Confident scheme) and we are happy to discuss flexible working arrangements for staff who need adjustments to support them at work or have caring responsibilities.
If no vacancies are listed at the moment please check back regularly, or consider subscribing to our updates or getting in touch with us.
Chair of the Board of Trustees
Genetic Alliance UK is seeking a Chair who can help steer the organisation through its next chapter of growth, strengthening its influence and ensuring the voices of those living with genetic, rare and undiagnosed conditions are heard at every level.
- Location: Remote, with in-person meetings in London twice each year
- Salary: Reasonable expenses paid
- Closing date: Monday 11 May 2026
As the incoming Chair, you will play a crucial role in supporting the Board and executive team to deliver the current strategy and to position Genetic Alliance UK for long‑term sustainability, impact and reach. You will ensure robust governance, clear strategic direction and a collaborative, high‑performing Board culture, while helping to enhance the organisation’s profile and strengthen key partnerships.
Genetic Alliance UK operates at the intersection of patient advocacy, policy and research, driving meaningful change across the healthcare system. To lead effectively in this environment, the new Chair will bring strong board‑level experience and the credibility to engage confidently with a diverse range of stakeholders.
Find out more and apply: https://www.peridotpartners.co.uk/jobs/chair-genetic-alliance-uk/