In-person

Rare Disease Day 2024 Westminster event

- Date: 29th February 2024 - 29th February 2024
- Time: 14:00 - 17:00
- Location: Terrace Pavilion, House of Commons
- Organiser: Genetic Alliance UK
- Book your place Add event to calendar

This Rare Disease Day event is run by Genetic Alliance UK as part of our nationwide Rare Disease UK campaign.

All of our information, policy and campaign events are completely free to attend. However, any donation, no matter what size, will help us to continue our mission to ensure that people and families living with rare, genetic or undiagnosed conditions have access to a final diagnosis, coordinated care and specialist care and treatment.

Genetic Alliance UK are excited to be hosting the annual Rare Disease Day Parliamentary event in Westminster! Rare Disease Day is an annual international day aimed at raising awareness and highlighting the needs of people with rare conditions.

Before registering your interest, please note:

Registering your interest on this page DOES NOT confirm that you will be able to attend this event. We will be in contact following your registration to confirm hat you have a space at the event.
Due to capacity of the venue, we are currently limiting the number of tickets issued to two per organisation.
More tickets may become available so please register your interest to keep updated, even if the event has sold out.

If you are unable to attend, please cancel your registration for the event to allow others to attend.

Refreshments will be available at the event.

If you have any queries, please email [email protected].