SWAN UK to launch new videos on Undiagnosed Children’s Day – Friday 24 April 2026

Share our videos this Undiagnosed Children’s Day

Parents of children with undiagnosed genetic conditions often see so many different healthcare professionals. It takes an average wait of 5.6 years for a rare diagnosis in the UK – through 8 clinicians and 3 misdiagnoses. We have created 3 videos for healthcare professionals so that they have a greater understanding of what it means to have a child with an undiagnosed genetic condition and the challenges that families face. We will launch these on our YouTube channel, this page and our social media channels on Friday 24 April 2026. If you are a healthcare professional or would like to share them in advance with healthcare professionals that you see please get in touch and we can send you embargoed copies: [email protected].

For more ways to get involved in Undiagnosed Children’s Day click here.